“We do not defeat death with a transplant; rather, we gain an extension of life. So the real question becomes, what are we going to do with the days, months, and hopefully years of extended life?’… the same question even the non-transplanted face in their own lives.”—Quote from a heart recipient
Anthony Stokes’ private fight to live became a public spectacle that turned the harsh light of society on a medical practice that has been part of America for decades.
When the 15-year-old Georgia resident was denied an opportunity to get on the heart transplant list by Children’s Healthcare of Atlanta at Egleston, allegedly because of his lifestyle, the dark underbelly of the transplant system was exposed.
A thinly-veiled overriding determining factor seemed exposed—who lives and who dies depends on who has the money.
When dealing with minorities in the world of organ transplanting, the global economy and the value of human life come into play when determining who lives and who dies, and it is usually the African American who dies, contends Don Shorter of the World Health Organization.
Shorter stated he wanted to make it clear that “in the United States, when we examine transplants on a microcosm level and focus on African Americans, certain issues arise as in the case of 15-year-old Stokes, which eventually led to an African American almost not receiving an organ, and not living a full life. However, if you are white, you have a better chance of getting extended life through an organ donation sometimes regardless of age.”
Shorter bases his conclusion on a study—“Access to Kidney Transplantation” (2008)—which found that white males, who were young and nondiabetic with a high income and being treated in small kidney transplant units were more likely to receive an organ transplant under Medicare than black kidney patients. The study also found that the size of a transplant unit may be correlated with access.
The numbers on minorities and organ transplants
National Minority Donor Awareness Week, celebrated annually Aug. 1 through Aug. 7, is a nationwide observance to educate minorities of the desperate need for donation and transplantation within the multicultural community.
Approximately 56 percent of those on the U.S. transplant waiting list are minorities:
• In 2012, 11,309 minority patients received organ transplants; while there were 2,762 minority deceased donors and 1,711 minority living donors.
• More than 66,000 minority patients are currently registered on the U.S. organ transplant waiting list.
• Minorities make up 36 percent of the U.S. population and comprise 56 percent of individuals on the U.S. transplant waiting list. They represent 32 percent of living and deceased organ donors.
• African Americans are four times more likely than Caucasians to be on dialysis because of kidney failure, which must often be treated by kidney transplantation.
• Diabetes, a leading cause of kidney failure in the U.S., is estimated to be four to six times more common in Latinos/ Hispanic-Americans.
• 17 percent of all patients awaiting organ transplants in the United States are of Latino heritage.
This article originally appeared in the Sept. 18 print edition.
About the Author (Author Profile)Frost Illustrated is Fort Wayne's oldest weekly newspaper. Your Independent Voice in the Community, featuring news & views of African Americans since 1968.
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